Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic DiseaseDivided We Stand: The Collaborative Work of Patients and…Mar 30, 2021Mar 30, 2021
Characterizing variation in menstrual cycles using self-tracked dataA member of our lab, Kathy Li, has published a paper in Nature’s partner journal Digital Medicine! The paper is titled “Characterizing…Mar 4, 2021Mar 4, 2021
ENDOMIC: A short film to raise awareness about endometriosisHappy holidays fellow Citizen Scientists! I’m Ipek, an Associate Research Scientist working with Dr. Elhadad and the rest of our team at…Dec 22, 2020Dec 22, 2020
Interview with Dr. Laura SymulDr. Laura Symul is a postdoctoral fellow at Stanford University. She obtained her PhD in computational biology at EPFL in Switzerland. Her…Jul 1, 2019Jul 1, 2019
Attending the Conference of the Society for Menstrual Cycle ResearchEarlier this month, our team at Citizen Endo traveled to Colorado Springs to attend the 23rd Biennial Conference of the Society for…Jun 18, 2019Jun 18, 2019
Patient advocacy and health literacy: Interview with Abby Norman, Author of “Ask Me About My…Implicit bias has stained healthcare, creating an all too common experience for people with endometriosis of dismissive physicians…Oct 1, 2018Oct 1, 2018
Bad Medicine & Lazy Research Leave Women Dismissed and Sick: Interview with Maya Dusenbery, Author…“It’s all in your head” — it’s a phrase that many women with endometriosis are either told explicitly or implicitly. Receiving recognition…Aug 22, 2018Aug 22, 2018
Phendo Challenge #2 ResultsFor our latest Phendo tracking challenge (from March 20-March 27, 2018), we invited participants to complete the World Endometriosis…May 4, 2018May 4, 2018
Getting More InsightsGood news! we have created a more detailed visualization of your data in Phendo! We know a lot of you wanted to be able to share your data…Mar 14, 2018Mar 14, 2018