Recently, Adrienne Pichon, a member of our lab published a research paper titled “Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease”. On October 19th, Adrienne presented the paper at the 23rd ACM Conference on Computer-Supported Cooperative Work and Social Computing! The paper discusses the complexities of the patient-provider relationship, which is further complicated for enigmatic conditions (ie, endometriosis). This research will help guide development of tools for patients and their care team to understand, communicate about, and manage their illness.

We wanted to understand how women living with endometriosis care for their condition…

Citizen Endo

Patients and data science for an endometriosis cure: We bridge the gap between patient experience and clinical characterization of endometriosis.

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