A member of our lab, Kathy Li, has published a paper in Nature’s partner journal Digital Medicine! The paper is titled “Characterizing physiological and symptomatic variation in menstrual cycles using self-tracked mobile-health data.” Below is a summary of the paper, but you can also read it here. The menstrual cycle…

Happy holidays fellow Citizen Scientists! I’m Ipek Ensari, an Associate Research Scientist working with Dr. Elhadad and the rest of our team at Citizen Endo. This year has been strange and challenging for many, but we have some exciting news to share with you to end 2020 on a high…

Dr. Laura Symul is a postdoctoral fellow at Stanford University. She obtained her PhD in computational biology at EPFL in Switzerland. Her interests include menstruation, fertility awareness, and data science. Period and fertility tracking apps have emerged as a monitoring tool for users, but are also shaping the current research…

Earlier this month, our team at Citizen Endo traveled to Colorado Springs to attend the 23rd Biennial Conference of the Society for…

Implicit bias has stained healthcare, creating an all too common experience for people with endometriosis of dismissive physicians, downplayed health concerns, and delayed diagnoses. Particularly, there exists gender norms in pain literature, distinguishing men and women’s perceptions and managing of pain. In fact, studies have shown that women receive less…

Bad Medicine & Lazy Research Leave Women Dismissed and Sick: Interview with Maya Dusenbery, Author of “Doing Harm” “It’s all in your head” — it’s a phrase that many women with endometriosis are either told explicitly or implicitly. Receiving recognition of endometriosis symptoms from doctors is a frustratingly similar experience among endometriosis patients, and on average it takes 8 years to receive a diagnosis. It’s known in the…

For our latest Phendo tracking challenge (from March 20-March 27, 2018), we invited participants to complete the World Endometriosis Research Foundation (WERF) Clinical Questionnaire as well as a questionnaire about the type and stage of their endometriosis. This survey represents the gold standard in clinical questionnaires for endometriosis. Every woman…

Good news! we have created a more detailed visualization of your data in Phendo! We know a lot of you wanted to be able to share your data with your physician or with others, and ‘Get more Insights’ allows you to do this. …

We recently held our very first Citizen Endo challenge! Citizen Endo challenges are short tracking tasks that help engage Phendo users in contributing to citizen science through Citizen Endo, a critical part of our participatory approach to understanding endometriosis. …