Citizen Endo – Medium

Citizen Endo

Screening of Below the Belt at Columbia University

Dec 18, 2023

Screening of Below the Belt at Columbia University

Dec 18, 2023

Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease

Divided We Stand: The Collaborative Work of Patients and…

Mar 30, 2021

Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease

Mar 30, 2021

Characterizing variation in menstrual cycles using self-tracked data

A member of our lab, Kathy Li, has published a paper in Nature’s partner journal Digital Medicine! The paper is titled “Characterizing…

Mar 4, 2021

Characterizing variation in menstrual cycles using self-tracked data

Mar 4, 2021

ENDOMIC: A short film to raise awareness about endometriosis

Happy holidays fellow Citizen Scientists! I’m Ipek, an Associate Research Scientist working with Dr. Elhadad and the rest of our team at…

Dec 22, 2020

ENDOMIC: A short film to raise awareness about endometriosis

Dec 22, 2020

Interview with Dr. Laura Symul

Dr. Laura Symul is a postdoctoral fellow at Stanford University. She obtained her PhD in computational biology at EPFL in Switzerland. Her…

Jul 1, 2019

Interview with Dr. Laura Symul

Jul 1, 2019

Attending the Conference of the Society for Menstrual Cycle Research

Earlier this month, our team at Citizen Endo traveled to Colorado Springs to attend the 23rd Biennial Conference of the Society for…

Jun 18, 2019

Attending the Conference of the Society for Menstrual Cycle Research

Jun 18, 2019

Patient advocacy and health literacy: Interview with Abby Norman, Author of “Ask Me About My…

Implicit bias has stained healthcare, creating an all too common experience for people with endometriosis of dismissive physicians…

Oct 1, 2018

Patient advocacy and health literacy: Interview with Abby Norman, Author of “Ask Me About My…

Oct 1, 2018

Bad Medicine & Lazy Research Leave Women Dismissed and Sick: Interview with Maya Dusenbery, Author…

“It’s all in your head” — it’s a phrase that many women with endometriosis are either told explicitly or implicitly. Receiving recognition…

Aug 22, 2018

Aug 22, 2018

Phendo Challenge #2 Results

For our latest Phendo tracking challenge (from March 20-March 27, 2018), we invited participants to complete the World Endometriosis…

May 4, 2018

Phendo Challenge #2 Results

May 4, 2018

Getting More Insights

Good news! we have created a more detailed visualization of your data in Phendo! We know a lot of you wanted to be able to share your data…

Mar 14, 2018

Getting More Insights

Mar 14, 2018

Challenge #1 Results

We recently held our very first Citizen Endo challenge! Citizen Endo challenges are short tracking tasks that help engage Phendo users in…

Aug 2, 2017

Challenge #1 Results

Aug 2, 2017

Patient and Researcher: A Personal Story

We thought it would be interesting and relatable to have an intern on the Citizen Endo team share her story — and why she decided to get…

Jul 13, 2017

Jul 13, 2017

Biomarkers for Endometriosis: State of the Art and Going Digital

The current standard for diagnosing endometriosis is to perform laparoscopic surgery. Surgery is not an ideal diagnostic tool given it is…

Jul 6, 2017

Jul 6, 2017

Reflections on Attending the 13th World Congress on Endometriosis

From May 17-May 21, team Citizen Endo was in Vancouver, Canada to attend the 13th World Congress on Endometriosis (WCE) — a very exciting…

Jun 23, 2017

Reflections on Attending the 13th World Congress on Endometriosis

Jun 23, 2017

Using Phendo: Frequently Asked Questions

A guide to Phendo, a mobile app for research and tracking endometriosis

May 1, 2017

May 1, 2017

Citizen Endo: A Project Update

For our community

Apr 26, 2017

Citizen Endo: A Project Update

Apr 26, 2017

Accessing & Sharing Your Medical Docs: Citizen Endo Survey Results

Recently, we asked the Citizen Endo community to complete a survey about medical documents related to endometriosis. We had a great…

Feb 24, 2017

Accessing & Sharing Your Medical Docs: Citizen Endo Survey Results

Feb 24, 2017

Phendo for All: Using the App Without Endometriosis

“I wish there were something I could do to help you”

Jan 18, 2017

Jan 18, 2017

The Value of Tracking Your Own Experience of Disease

To help you track and manage your endometriosis, Citizen Endo has created Phendo, a endometriosis self-tracking app & research study.

Dec 13, 2016

Dec 13, 2016

Pain and Quality of Life with Endometriosis

Recently, we asked about your experiences of endometriosis. We were struck by just how much endometriosis-related pain (and associated…

Oct 15, 2016

Oct 15, 2016

Citizen Endo

Citizen Endo

Patients and data science for an endometriosis cure: We bridge the gap between patient experience and clinical characterization of endometriosis.

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